Every child and youth with disabilities has to get equal access to, and participation in services and activities. Profoundly disabled children sometimes due to practical socio-economic reasons and inaccessible public transport systems cannot go to a Centre/school for receiving services and training. Another key challenge is in lifting and carrying the person with disability who is taller and heavier making it challenging for parents to bring them to a special school/centre for rehabilitation.
Many children with profound multiple disabilities often drop out of the system which could result in complete isolation of the person with disability and their families.
In HBP the rehabilitation worker goes on designated days to the home to train and guide the primary giver and other family members so that activities of daily living like feeding, dressing, washing, toilet indication etc. are done by the person with disability with our without support and show/tell the strategies for training.
The HBP Rehabilitation worker also guides the family to provide cost effective changes in the environment around the house such as making parallel bar for supported walking using bamboo sticks, or corner chairs made with mud or wood so that the person does not always stay in sleeping position or adaptations in the toilet space. Routines, movement, stimulation, communication, and social engagement are important so that cognitively, emotionally, and motorically the person thrives.
Home Based Program provides the critical support to the family by training them, guiding them in developing and carrying out daily routines organically including physical therapy. Families are guided on ways to prevent pressure sores.
Families have to be thus empowered and connected to the service providers so that they do not miss out on schemes, benefits and assistance the Department of Differently Abled provides, or access benefits from The National Trust etc.
Home Based Programs reduce the dependency of the child and improve their autonomous behavior, develop the capacity to express feelings and ideas. This in turn minimizes the risks that come from abuse, isolation and neglect the child could be exposed or the family may experience.
Children who are deafblind and the children in our Community Based Rehabilitation receive Home Based Services.